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Franks Fund

Written by Louise, Frank's Mum. Part of Perspectives WOW* series.

In April 2016, just as Frank was looking forward to the next phase in his life at secondary school, our world collapsed when he was diagnosed with Ewing sarcoma, a form of bone cancer. He was just 11 years old.

The next 12 months was tougher for Frank than anything we could ever have imagined: 14 exhausting cycles of chemotherapy, 2 months of proton therapy in the US and an horrific 8 hour operation to remove the tumour and a substantial part of his pelvis.

We knew we had to be strong for Frank but it worked the other way round too. His positivity, resilience and amazing character kept us all going through some very tough times.

His raw courage in learning to walk again after his operation and the way he quietly got about rebuilding his life and getting back to school were awe inspiring.

Then in September 2017, after just 5 months in remission, we found out the disease had returned. Frank was confronted with further endless cycles of chemotherapy and radiotherapy with just a tiny chance that it could cure him. Somehow he found the strength to keep going and the spirit to remain cheerful. He just wanted to behave and be treated like any other teenage boy. If anyone asked him how he was feeling they always received the same answer, ‘I’m good thanks’, accompanied by a huge grin.

We enjoyed a brilliant Christmas together but by the middle of January 2019 Frank’s health was failing fast. Our beautiful boy’s short life ended on 9th February 2019. We are left devastated but immensely proud.

Ewing sarcoma most commonly affects children and young adults aged 10-25 years old and makes up about 1.5% of all childhood cancers. A child, teenager or adult is diagnosed with primary bone cancer every 10 minutes somewhere in the world, but primary bone cancer received just 0.028% of funding from the major UK cancer charities in 2018/19 and shockingly their investment in the disease dropped by 17% to a 17-year low. Treatment protocols are out of date and gruelling. It’s a scandal that the lack of investment means that neither treatment nor survival rates have improved in over 30 years and that there’s so little chance of survival if it returns.

Frank would never have wanted any child to suffer as he suffered. If his death is to have any meaning at all, it needs to be to help people who are diagnosed in the future by raising funds that can be invested in much needed research.

Text BCRT FRANK to 70800 to donate £5

*Text donation costs the donation amount + standard network rate. Frank's Fund will receive 100% of your donation.

*Words of Wisdom


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